Versus Arthritis and Developments in Patient and Public Involvement (PPI)

Thursday 19 November, 11:00 - 12:00 GMT

Versus Arthritis has a proud history of involving people with arthritis in our research activities and decisions and supporting others in this work. Never has patient and public involvement (PPI) in research been more vital in a world of lockdown and funding challenges to ensure the work we fund is rooted in patient benefit. 

Our session will describe developments in our research involvement and participation work at Versus Arthritis and how we envisage our future. Following this, a facilitated discussion will enable attendees to share experiences and challenges of PPI in research.

The BIA is proud to support Versus Arthritis as the BIA Charity Partner of the year.

Speakers

Ruby Bhatti OBE

Public Contributor

Ruby has over 15 years of experience as a Public Contributor. She is Chair of the Wolfson Centre for Applied Research; Chair for the Quality and Safety Patient’s Panel based at Bradford Institute for Health and Research (BIHR) and board member for the NIHR Applied Research Collaboration (ARC) Yorkshire and Humber board.

She is a Reviewer for the National Institute of Health Research (NIHR) and a Patient Research Ambassador for the BIHR and Bradford Teaching Hospital Foundation Trust( BTHFT).

Ruby is currently the Deputy Lay Chair for the Bradford District and Craven Clinical Commissioning Group; Chair for the Primary Care Commissioning Committee; Member of the West Yorkshire and Harrogate Joint Committee of Clinical Commissioning Groups. She sits as an Associate Hospital Manager for the Mental Health Department, and also a committee member on the Mental Health Legislative Committee both for Bradford District Care NHS Foundation Trust (BDCFT).

Ruby is a member of NIHR CRN CC Covid-19 Public Advisory Panel; Yorkshire & Humber BAME Advisory Panel; Covid-19 Patient and Public Involvement Network for NIHR Leeds Biomedical Research Centre (BRC); Yorkshire & Humber Research Champion panel. She has recently been appointed on the NIHR Urgent Public Health Review Panel and Yorkshire & Humber Vaccine trial group.

Angela Davies

Head of Research Engagement

Versus Arthritis

Angela has worked at the charity for 2 years. She is responsible for the areas of Research Involvement, Communication/Evaluation and Researcher Engagement. Her aims are to ensure the charity’s research endeavours focus on deriving maximum benefit for people with arthritis, that our researchers are supported and we are effectively demonstrating the impact of our research investment. Angela’s background is in academic librarianship and researcher support.

Denise Faulkner

Centre Manager

Centre for Epidemiology Versus Arthritis, University of Manchester

Denise has worked at the Centre for 2 years. She is responsible for the day-to-day administrative and operational management of the Centre and is a member of the Centre’s Patient and Public Involvement (PPI) Strategy Team. She worked with the academic lead and patient partner to develop the Centre’s PPI strategy. Our vision is to be amongst the UK’s leading research departments for Patient and Public Involvement/Engagement (PPI/E). We aim to position patients and PPI/E activities at the very heart of everything we do, knowing that by working together we can make our research and impact more successful.

Joyce Fox

Centre Patient Partner

Centre for Epidemiology Versus Arthritis, University of Manchester

Joyce has been Centre Patient Partner for 4 years and is a member of the Centre’s Patient and Public Involvement (PPI) Strategy Team. She works with the Centre to ensure that PPI is meaningfully embedded throughout the Centre and its research portfolio. Joyce is committed to developing ways of involvement that promote inclusivity and diversity to ensure that research reflects the priorities and outcomes of importance to people living with arthritis.

Joyce’s background is in training management in industry and the charity sector, and teaching in secondary schools, further education, and higher education.

Naomi Gay

Research Involvement Manager

Versus Arthritis

Naomi is the charity expert on Research Involvement and has been at Versus Arthritis for almost 2 years. She is a self-confessed Patient and Public Involvement (PPI) geek and started working in User-involvement in homelessness almost 20 years ago before moving into PPI in mental health, then medical research. She has held roles at Mind, Cancer Research UK and British Heart Foundation developing and implementing PPI strategies and support for staff. Naomi is currently leading a review of Research Involvement at the charity.

Jane Wall

Director of Business Development and Membership Services

BIA

Jane joined the BIA in March 2016 as Director of Business Development and Membership Services, with overall responsibility for the recruitment and retention of members, development and delivery of membership services and BIA events.

Prior to this role and a short spell at the Food and Drink Federation assisting with membership development, she held the positions of Associate Director and Head of Sales & Marketing over a period of seven years at the Fire Protection Association – leading on membership and member events, publications, risk services, sales and marketing, CRM implementation and digital presence. Jane’s experience prior to this included Business Development Manager within tech transfer at Oxford Brookes University, four years at T&F/Informa Journals as Managing Editor and Publisher, and reference publishing at Oxford University Press and IBSS (International Bibliography of Social Sciences).

Jane holds a first degree in Italian and European Literature from Warwick University, an MA in Social Anthropology from SOAS, and an MBA from Oxford Brookes Business School.